Emerson had therapy at Children's today and she did so wonderful! First in speech Patrice noticed that Emerson was more awake and more verbal (crying). Also she noticed her trying to track things. Like when she talked Emmy would move her head and eyes to her and then when I would talk she would move towards me. In PT Hiliary says she heard Emmy say "mom" I kind of heard it but I guess it's hard for me to really believe it. lol. Others have noticed Emmy saying "mom" before but again I just can't believe it because it isn't extremely clear. Hiliary said no it wasn't clear but it was a clear mmmmm sound. So that's awesome. Also Emmy followed me in PT today not my voice but me, which is awesome, yet again. Also Hiliary put Emmy in her walker again and she did fantastic with her head control and pushing on her legs. Her right leg still seems to be weak as it buckles when she pushed on her legs. That's ok we'll just have to keep strengthing them. In OT Emmy did well she lifted her head from a flat position and from a sitting position. So all in all she had a fantastic day in therapy.
As you all know I have found great support in NDSN website as all these moms are going through what I am going through. Everyday I look to see if anyone posted anything new so I did that today and someone who has a child that near drowned in 2007 commented stating that she was just begining the site as well and that her son was at Children's for therapy. I truly believe it was God bringing us together. And I am so glad that he did. She is a strong woman of faith and God has performed so many miracles for their family, and I am so happy that he did. As I was reading her blog I came across these bible verses and it just hit home......
"For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future.'" - Jeremiah 29:11
"I am still confident of this: I will see the goodness of the Lord in the land of the living. Wait for the Lord; be strong and take heart and wait for the Lord." - Psalm 27:13-14
I know the good Lord has plans for my precious Emmy and for my whole family. I also know they will be in his time which has been my biggest struggle, but it's getting better. I am so blessed to have come across these two verses!
I am excited because of all of God's miracles in these babies, all of them have improved and so many of them are living a wonderful quality of life, which has been my main fear from day one. I am nervous for the furture because some children still improved but not as well as I pray for my Emmy to be. I am scared that Emmy could be this way. Of course I will love my Emmy and continue on this journey no matter the outcome but my biggest hope and prayer is for her to continue to heal and heal to 100% and the best quality of life possible. Now I am overwhelmed because since all of these mom's are so wonderful and want only the best for their babies and for them to get better they have all put their babies in non traditional therapies to help move the healing process a long, well since I have joined I have been told of so many therapies out there and am just overwhelmed at EVERYTHING they have. I want the best for Emmy and I want to give her the best chance to heal 100% with God's hand as well but I don't know which therapy to begin doing first, where they are, how much they are, how to begin getting funds for them, and the list goes on. So I have stepped back, taken a deep breath, and am putting it in God's hands. He will lead me to what is best for Emerson, as he already has and will continue to do.
I am so much better now then I have been in the last month. I know I got off of God's path for a little bit but I am back and ready to take on this journey. With my family and God nothing is impossible!!!!! God bless to everyone!
Hi Barbara,
ReplyDeleteI saw your post at on the Yahoo chat board, and had to come check out Emerson's site. I meant to just lurk, but when I saw Psalm 27:13-14, I knew I had to write. That has been our guiding verse since my daugther, Abbie, drowned in 2004. God is ever so faithful, and He is going to do amazing things for, through, and with each of you during this journey.
We had a Near-Drowning Mom's retreat in November in Washington State. It was so much fun that we made it the "first annual", and are already planning next year's get together (perhaps in Oct.)...tuck that away in your brain for now, and we'll hope to see you then.
There are none who can understand as well as moms rowing this same stinky boat - and we are glad to "meet" you and your family. You will be in our prayers.
Blessings!
Tiffany Vara
Honolulu, HI
www.prayforabby.com