Tuesday, November 9, 2010

There's no place like home.

So it's been a while since I have posted but Emerson came home on Friday October 1, 2010. We were so excited to have her home. Emerson seems to be so much more content being at home and I must say it's nice having my entire family home all together.

Saturday Emerson got to see her bubby play football! She did really well being outside for a while, I think she really enjoyed the breeze. For the first week Emerson and I were just trying to figure out a routine and getting the last little things situated with all the outpatient programs we have going on. The following Monday that we were home October 11 Emerson gave us a scare and ended up going back into the hospital. 

So this is what happened. Emerson has a g-tube which allows her to get food through her belly instead of by mouth. While they did that procudure they decided to also give her what's called a fundunession (sp?) which is where they tighten her esophagus around her stomach to prevent her from vomitting which will in turn prevent her from asperating anything into her lungs. Well about two weeks before we left the hospital Emerson began gaging and then vomitting, this was alarming to us and the doctors since she had the procudure and shouldn't be able to be getting anything up. Well they had a upper GI done to see if the nissen was slipped or moved or whatever well the results came back and everything seemed to be ok. So they decided to just send us home to pretty much deal with the situation. Well from the day we got home Emerson was vomitting everyday if not two times a day but on Monday when she vomitted her lips turned purple. So I became alarmed and called my physician on call and he told us to bring her to the ER immediately and have her re-checked again bc she shouldn't be able to vomitt and plus her lips were purple. While in the ER she vomitted again so the ER physician was able to see, I wasn't crazy. lol. So she decided to admit Emerson and have some more test run. The next day Emerson had a GI study done and the results came back just as the upper GI. No slip nissen; nothing, everything looked great. So they decided to put her on Nexium which is an acid reflux medication and also do an acid reflux test over night. Here is Emmy while the test was going on.

No offical results had come back when Thursday the Dr. came in and said since she has been being treated with acid reflux medication and hasn't been vomitting were going to go ahead and send her home and assume that the vomitting was from reflux. The resluts have since come back and it is indeed acid reflux. So thank goodness that's all it is.

So we were released on October 14th and since we have been home for the second time Emerson has been outside swinging with her bubby.

Met her new cousin Luke and visited with all her other cousins- Bella, Addy, & David

Had some play time with mommy too!
Oh! And we finally got a glimpse of her smile!!! :)

Our last week!

So I was going through trying to update Emmy's blog and this was our last week at Children's, yes long overdue, sorry! :) But please enjoy.

Well it's been about one week since I last posted but Emerson is getting ready to go home. I have been so busy since last Friday. I went home started polishing all her furniture, cleaning sheets, vaccuming, lysoling EVERYTHING, organizing and all. Getting together her medicines for home, getting all her machines together and learning how to use them, and so much more. So I have been busy.

Emerson has continued to do so well in her thearpies this week no real big improvements. She is still working on her head control and swallowing well and has good range of motion in all extremeties. Emerson had her first car ride in three months and her second outting to her Uncle Richard and Aunt Fara's house. She also got to meet her cousin Luke for the first time! :) We also watched the Saints game and she was too adorable in her pink Saints jersey. Here are some pictures of what she was doing the last two weeks in thearpy and some pictures to go with what she was doing in the last post. 

Mrs. Lori and Emmy in her walker

Emmy at OT in her bean bag swing

Playing in the ball pit :)

In the ball pit with Mrs. Leslie!

Emerson's first car ride in three months!

Emerson's first outting to her Uncle's House

These are the three women that have brought Emerson so far and I can not thank them enough! This is Verlencia Emerson's speech therapist! She has helped Emerson start eating baby food by mouth, keep her speaking valve on all day, start making G and C noises, and begining to drink juice again. We love Mrs. Verlencia and honestly can not thank her enough! :) 
Next is Mrs. Leslie Emerson's Occupational thearapist. She has done so much for Emerson as well. She has gotten her hands to not be so tight anymore, has gotten her to begin playing with toys particually one toy, the ball! lol. We love Mrs. Leslie too!
Mrs. Lori & Emmy Lou
And last but most def. NOT least Mrs. Lori Emerson's physical therapist. She has been the MOST amazing. She has gotten Emerson's feet back to where they should be, she has gotten her to hold her head up, begin walking in her stander, and so much more. But honestly we have been blessed with the most amazing theripists! I couldn't have dreamed of anyone better to help my Emmy.
Here are some pictures of some more very important and special people we have met during our three month stay at Children's.

We love everyone at Children's and are sad to leave but will be so excited to be home too!