So it's been a little over a month since I have posted and so much has happened. I don't even know where to begin.
Since Emerson has been decannulated she has been doing wonderful! Mommy still uses her apnea monitor at night......it's my security blanket at night. :) The only issue we are having is that the hole hasn't closed up yet but we have an appointment in the first week of June (which is slowly creeping) to discuss what to do about this, but it looks like they'll be stitching it. But we shall see.
Emerson had a visit with her neurologist and before papers would be signed for NAPA Center she wanted Emerson's hip and back checked out since there were bad. We also had levels drawn to see what to do about her seizures. All in all this appointment went well no major changes, yet.
We visited with the orthopedic and he said her back was fine to attend Napa center and that her feet were great as well and that we could actually stop using her AFO's.